It's been a week since Ellie was born and oh what a week it's been. Since I have all of about 15 minutes to write this I'll get straight to the point. Here are the highlights (and low lights) of Ellie's first week of life.
Birth Story
I had been measuring on the small end of normal my entire pregnancy, but my doctor wasn't too concerned because I was still growing consistently. At my 37 week appointment my doctor expressed a little concern that my growth had slowed and was flirting with the line of being a problem. At my 38 week appointment 10 days later my fundal height had gone from 35 cm to 34 cm (it is supposed to be the same amount of cm as you are weeks). We weren't sure if it was the baby that wasn't growing or low fluid volume, but either way something wasn't right and it was time to get this little girl out. I had really been hoping for a VBAC, but since I couldn't be induced our only choice was to schedule a c-section. A very small sacrifice to get our baby here safely. So two hours later we were at the hospital getting prepped. Having a scheduled c-section verses an emergency one like Miles was a completely different experience. I have to add that my childhood neighbor, Brian Mathews was my Nurse Anesthetist and my Uncle, Doug Allen, ended up assisting Dr. Lawrence doing the surgery. It was quite the personal affair, and it was nice knowing I was in good hands. Ellie was born and we were all blown away by just how small she really was.
She weighed in at 5 lbs 10 oz and 16 inches long. When Dr. Lawrence brought her around to show me I couldn't believe what a short and tiny little thing she was. I was thrilled to see a head full of dark hair. I always imagined her having dark hair like Mason. It turns out the umbilical cord was extremely small, like just bigger than a pencil. It was one of the smallest my doctor had ever seen. She was officially given the diagnosis of IUGR (Intrauterine Growth Restriction). Ellie was taken down to the nursery and that is where her story begins.
Day 1 She weighed in at 5 lbs 10 oz and 16 inches long. When Dr. Lawrence brought her around to show me I couldn't believe what a short and tiny little thing she was. I was thrilled to see a head full of dark hair. I always imagined her having dark hair like Mason. It turns out the umbilical cord was extremely small, like just bigger than a pencil. It was one of the smallest my doctor had ever seen. She was officially given the diagnosis of IUGR (Intrauterine Growth Restriction). Ellie was taken down to the nursery and that is where her story begins.
- Put on CPAP for periods of apnea. Stayed on it for 5 hours.
- Blood pressure low and Hematocrit low.
- IV started after an hour and a half of trying. IV fluids started.
- Admitted to NICU.
- Put on oxygen to keep oxygen saturation levels up.
CPAP
Mason came with Grandma Nancy right after she was born and watched her in the nursery.
Things didn't go quite as smoothly as we hoped so Mason entertained himself by playing with his big brother gift while the adults worried about everything going on with baby girl.
All hooked up.
Ellie's pink corner.
Dad's first hold after a long day.
Mom's first hold.
- Doctor Glade is very concerned about her. A lot of talk about some abnormalities they've noticed that suggest a need for genetic testing. Talk of transferring to Primary Childrens.
- U of U geneticist consulted. Unable to match symptoms to any obvious syndrome. Thinks eating and breathing problems due to IUGR. Suggests following up with genetic testing after discharge.
- Feeding tube placed to help with feedings.
- IV fluids stopped.
- Decided on the name Ellie Jane.
- I was discharged, but was able to board in a room by the NICU.
- A lot of prayers being said on Ellie's behalf.
Sporting her new feeding tube.
- Echocardiogram, Cranial ultrasound, and Renal ultrasound done. Some minor abnormalities on echo that will require follow up, but Cranial and Renal ultrasounds completely normal.
- Completely worn out by all the tests and didn't eat well. Required most feedings to be given through NG tube.
- Weaned off oxygen, but still requires blow-by oxygen when eating and occasionally when crying.
- Opened eyes for the first time after bath.
- Looking and acting much better. We definitely felt the power of prayer.
Closest thing to a family picture we were able to get. First time opening eyes.
- Focus was on eating and resting all day. Did really well with feedings and took 1 ounce every 3 hours.
- Oxygen levels continue to drop into 70s when eating. Blow-by used to help.
- Swelling from CPAP has gone down and she is getting more and more beautiful.
Daddy's girl is absolutely right.
Grandma got some snuggling time today.
- Doctor Glade sees her for the first time since Friday (day 2) and says he hardly recognized her because she is doing so well. Thinks she might be able to go home tomorrow and will continue treatment outpatient.
- Put back on trace amount of oxygen to help with feedings and crying. Will be going home on oxygen.
- Increased feedings to 1.5 ounces every 3 hours.
- Doctor writes orders for discharge.
- Home oxygen and apnea monitors set up.
- Weighed 5 lbs 2 oz on discharge.
- Came home to some very excited brothers and sisters.
- Slept like an angel all afternoon.
- Screamed from 10pm-5am.
So tiny.
Headed home
Not a fan of her oxygen and loves to pull it out.
Home at last.
With Ellie in the NICU we never really had a great opportunity for the kids to come and meet their baby sister. All Brynn got to do was take a quick peak at her and Mason got to hold her once and Miles wasn't allowed in at all. This made our homecoming even more special, because it was our first time together as a family.
The new and improved Murray family. |
Mason is totally infatuated with Ellie. He colored countless pictures for her while she was in the hospital and asked us to hang them around her bed in the NICU. He loves to hold her and is so sweet and gentle with her.
Mason's first time holding Ellie. |
Brynn loves Ellie from a distance. She is very intimidated by her oxygen and all the monitor cords. She has still never held her, but will cautiously approach her and lovingly touch her hands and arms while singing songs to her. She is very possessive of Ellie and informs everyone that "She is MY baby sister. You can only kiss her if I say you can."
My girls. |
Miles is enthralled with the "baa-baa" (yes, like a sheep noise). So
far he has been surprisingly gentle with her. Watching him go over and
squat next to her and just smile and talk to her is by far the most
precious thing I've ever seen. He loves to share things with her and
will take books, blankets, and many other random things and set them on
her. To say he loves her is an understatement. I'm so glad Ellie will always have Miles to be her big protector.
He'll just sit there for as long as we let him. |
Ellie in her little boy jammies. There were only 3 premie outfits in the store and one of them was for boys, but we needed more than just two to rotate, so this is what she got. |
I have never seen a more worried and protective Dad than I have seen in Scott this last week. He was supposed to leave for his internship in Omaha the day after Ellie was born. The minute we knew things weren't going as smoothly as we had hoped he was on the phone with Union Pacific to tell them he couldn't leave his family right now. Thankfully they stopped him as soon as he said his baby had had some complications and told him he needed to be here with our family and moved his start date back a week. It is absolutely killing him that he has to get in the car and leave to Omaha tomorrow. He is so in love with his little girl.
At the end of the week things are so much better than we thought they would be. If there is one thing we have learn about Ellie it is that she is a fighter. We are so grateful to be home. Now if we can just get her to get her days and nights switched then we'll really be doing great!